Esther is doing really well this morning!Â She's off oxygen completely right now - they even took her tent away!Â She's currently in an isolet (I called it an incubator yesterday) as she was not staying warm after they removed the tent.
She's down to just one light for her jaundice and her numbers have come down from 19 late yesterday to 13 this morning on the biliruben count - that is great improvement as well.
I got to change her diaper again this morning, and talk and touch her and she responded to me nicely - she even took her binky for a while and it seemed to really sooth her.
She did have an eventful night - she had been placed on her tummy andÂ ended up stressed due to breathing difficulties because of being on her tummy with the feeding tube and around 1 am her oxygen levels dropped and she was having a lot of trouble breathing - some mucus was making it tough for her - they ended up removing her feeding tube and calling the pediatrician in, by then she had been able to get past the mucus, they took chest exrays and her lungs were clear.Â She soon stabilized and by the time we got her she was off oxygen.
The weird thing was, I woke up about the exact time I woke up and just couldn't stop thinking about Esther and feeling like I should go to the hospital - I woke Daryl up and we talked and he told me to try to go back to sleep, but that if I was still awake after an hour, he'd take me down - I was able to go back to sleep after some reading and praying.Â So when I got to the hospital this morning and heard about her problems during the night, I was so surprised that I had somehow been that in tune with her even though we were separated by 30 miles!
Right now she's sleeping peacefully and holding her own.Â I'm not sure if/when they'll be placing the feeding tube again as they don't want to stress her now that she's just been competely weened off the oxygen.
Also, I decided that since she has a stronger sucking reflex than we expected, and I found out that breastmilk is so much more important for down syndrome babies that I am going to attempt to get as much breastmilk for her and also to breast feed her (it will help to develop muscle tone in her mouth that can help her in speach development later on).Â I started pumping yesterday afternoon, but so far I've only gotten a few drops.Â I have exclusively breastfed all but Elizabeth - I had to suppliment with her just due to low milk - she had trouble gaining weight her whole first year.Â I did breastfeed her the entire year, but had to suppliment the entire time.Â This is probably due to my age.
This morning I had to go to my Chiropractor, Dr Dan - last night I ended up carrying my bag to my 'camping room' and did something really bad to my back - I've been having major back issues for the last 6 weeks (it even got so bad that Dr. Dan sent a walker home with me and I even had to use it a few times!) .Â So last night I was having muscle spasms and roaming pains through my legs, back, neck and head.Â I got in right away this morning - my neck was so bad I couldn't even be on his table at first, so I had to lay on an ice pack while he adjusted Daryl!Â After icing I could finallly comfortable be on his table and he "fixed me up".Â I'm still having some back spasms - especially when going from standing to sitting, but this should improve over the next couple of days.
I'm also struggling with sever fatigue and my skin is quite pale, so I'm going to try to get some blood work done today to get my blood count.
So today's prayer requests -
Esther's biliruben counts continue to go down
She can maintain her oxygen levelsÂ on her own from her on out
That she'll continue to get stronger so we can begin to work on the feeding - that's the last big hurdle for her now - she can't go home until she's bottle feeding sufficiently to maintain her blood sugar levels on her own.
For me -Â that my milk will come in and that I can pump successfully for Esther (I've never had good experiences with breast pumping in the past),Â my back will heal quickly, and that my energy will return quickly.
Thanks so much for all your prayers and encouragement!
PS - I left my camera in my camping room - so I'll take some pics later today and add them then!